RESPONSE TO: REQUEST FOR INFORMATION: INPUT INTO THE DELIBERATIONS OF THE ADVISORY COMMITTEE TO THE NIH DIRECTOR WORKING GROUP ON DATA AND INFORMATICS (NOT-OD-12-032)

NIH posted the following Request for Information on the establishment of an NIH-wide data catalog.

The Data-PASS partners prepared a response summarizing the principles for data citation and access, and emerging practices and recommending the following:

• Articles published under NIH funding provide data citations to any evidence required to verify or understand the claims published. And these citations should at minimum contain a persistent identifier, title, author, and date.

• The metadata associated with NIH funded data and data citations be available under an open-access license and through an open API, and the identifiers compatible with and indexable by emerging cross-disciplinary catalogs.

• Proposals for future NIH funded research be able to list any relevant data produced by the Investigators, under the condition that such data follows NIH citation and access policies.

• Data cited should be made available through institutions with demonstrated capability to provide long-term access. And where full access is not possible because of externally-imposed data restrictions (such as confidentiality restrictions) should continue to be made available for research through a variety of modes, including full access to original data under appropriate license and security restrictions, and open access to data altered to maintain confidentiality.