RESPONSE TO: REQUEST FOR INFORMATION: INPUT INTO THE DELIBERATIONS OF THE ADVISORY COMMITTEE TO THE NIH DIRECTOR WORKING GROUP ON DATA AND INFORMATICS (NOT-OD-12-032)
NIH posted the following Request for Information on the establishment of an NIH-wide data catalog.
The Data-PASS partners prepared a response summarizing the principles for data citation and access, and emerging practices and recommending the following:
Articles published under NIH funding provide data citations to any evidence required to verify or understand the claims published. And these citations should at minimum contain a persistent identifier, title, author, and date.
The metadata associated with NIH funded data and data citations be available under an open-access license and through an open API, and the identifiers compatible with and indexable by emerging cross-disciplinary catalogs.
Proposals for future NIH funded research be able to list any relevant data produced by the Investigators, under the condition that such data follows NIH citation and access policies.
Data cited should be made available through institutions with demonstrated capability to provide long-term access. And where full access is not possible because of externally-imposed data restrictions (such as confidentiality restrictions) should continue to be made available for research through a variety of modes, including full access to original data under appropriate license and security restrictions, and open access to data altered to maintain confidentiality.